Dementia and Caregiving
Health care for elders with dementia and their families in diverse populations has been a focus of the work of SGEC through several decades. Some of the resources that have been developed are included in this section.
Ethnicity and the Dementias Book
The first edition of the volume, Ethnicity and the Dementias edited by Gwen Yeo and Dolores Gallagher-Thompson, was published by Taylor and Francis/Routledge in 1996, and the second edition in 2006*. It consists of 22 chapters written by experts in their fields; 4 chapters are devoted to issues in assessment of dementia in diverse populations, and 13 chapters focus on working with families in specific ethnic populations and one on gay, lesbian, bisexual, and transgender populations. Copies of the book can be purchased from online bookstores or ordered through local stores.
* All royalties for the book come to the Stanford GEC
SGEC contributes to WHO/ADI report "Dementia: a public health report priority"
In April 2011, the World Health Organization (WHO), in collaboration with Alzheimer’s Disease International, initiated a new project to develop a report on enhancing country preparedness for the increasing burden and cost of supporting a growing aging population with dementia. Four working groups were established, and SGEC Director, Dr. Dolores Gallagher-Thompson was invited to join the working group on caregivers. Other working groups included Epidemiology, types, classification and cost; Policy, legislation, health care system and social support structure; and Awareness raising and education, public and professional attitudes and ethical aspects. SGEC staff Marian Tzuang and Nate Gardner had assisted with literature reviews and writing parts of Chapter 5 on Dementia Caregiving and Caregivers. The comprehensive report "Dementia: a public health priority" was launched on April 11, 2012, to coincide with World Health Day, which this year has aging as its theme.
Other related materials can be downloaded from the following link: http://www.who.int/mental_health/neurology/dementia/en/index.html
Webinar Series on Ethnicity and the Dementias
In 2010 SGEC presented a series of nine monthly webinars on Ethnicity and the Dementias in collaboration with the California Area Health Education Centers. They included individual webinars on Assessment of Dementia and Caregiving for Elders in eight ethnic populations, including: Latino, African American, Chinese American, Japanese American. Korean American, Hmong American, Filipino American, and Vietnamese American. To view the recorded version of these webinars or obtain the handouts, go to http://sgec.stanford.edu/video/2009-2010_Webinars.html.
DVD & Workbook for Chinese / Chinese American Caregivers of Older Adults with Dementia
This set provides skill training in how to manage common situations that create stress in family caregivers. A narrator describes the enactments and encourages the caregiver to learn more information about the techniques being taught by completing the exercises in their workbook. This set is available at cost ($25) and can be ordered from SGEC.
Communication Tool for Emergency Preparedness (PDF)
The tool can be used by service providers when talking with ethnic elders about emergency preparedness. This was developed by the Hearing and Speech Center of Northern California (HSCNC), formerly the Hearing Society of the Bay Area, in collaboration with the American Red Cross, an outcome of the SGEC partnership with HSCNC.
Updates on Dementia Conferences
Each spring SGEC collaborates with the Alzheimer’s Association, Palo Alto Veterans Administration Health Care System, and other organizations to sponsor an annual conference updating recent developments in research, treatment, and caregiving support for diverse elders with dementia and their families. Featured speakers report on the latest information about assessment and treatment of the various kinds of dementia, with emphasis on practice implications. Each year SGEC sponsors a presenter whose focus is on ethnicity and/or other forms of diversity as they relate to assessment, treatment, and working with families of these older adults.
See information on current year’s Updates on Dementia conference on the SGEC Calendar. On line Registration will be available in April; for interim information contact the Alzheimer's Association of Northern California & Northern Nevada at: www.alz.org/norcal.
Ethnogeriatric Dementia and Caregiving Publications by SGEC Scholars and Affiliates
Additional Ethnogeriatric Resources
Important ethnogeriatric resources related to aging and/or ethnicity identified by SGEC staff and affiliates which are produced by other groups.
